May ICLW

Hello and welcome May ICLW’ers! Currently, I am stuck in an in between place somewhere. I’m not sure what treatment to pursue next. We did IVF in January of this year, had a chemical pregnancy, and then found out I have a clotting disorder. I also have Premature Ovarian Failure, which means I don’t have a lot of time left before menopause. (I’m only 28 – EEK!)

We haven’t had the funds to try IVF again. We’ve been going back and forth between medicated cycles (Clomid, Femara, Injects) and trying naturally. We added Lovenox and steroids to my regimen (which are supposed to help with recurrent pregnancy loss), and they seem to have helped to SOME extent. I have gotten pregnant a couple more times (yay), but still had chemical pregnancies (boo). We think my losses might be due to poor egg quality, in addition to my clotting disorder.

I take A LOT of supplements, in hopes of turning back my biological clock a little bit and boosting my egg quality. I don’t know if they are actually helping or not. My high FSH has lowered to almost a normal level, so that leads me to believe they have helped a little. Sometimes it feels like I’m getting nowhere though. There’s not much you can do if your eggs are bad 😦

What I’m doing now: Setting up a telephone consult with Dr. Sher (one of the leading IF specialists in the country), hoping for more testing and answers or awesome treatment protocol, taking my supplements, and sort of taking a TTC break. Of course, we’ll still be trying naturally for whatever that’s worth – but we won’t be expecting anything. I just want to focus on being healthy for now and give my body a break from treatments. Hopefully we’ll have a good game plan in place soon.

I’d like to say we will plan on doing IVF again late summer/early fall. I’m not sure yet though. I’m waiting to hear if our new insurance has any IVF coverage. I wish we could find some magic answer or treatment before then, or receive a natural miracle – and not need to do IVF! I guess there’s always hope, but I’m anxious to move forward with the best, most aggressive, more LIKELY avenue to get pregnant (and STAY pregnant).

But for now, we wait – and try to heal our hearts. It’s been a long few years.
Good luck and best wishes to everyone! Thanks for stopping by for ICLW!

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17 thoughts on “May ICLW

  1. I can't wait to hear what the new Dr. has to say! I'm starting Femara tonight, with the hopes that it's our magic drug! Hooray for no more Clomid. Hope you have a great weekend, Lisa!

  2. I know it's so hard to decide what to do next. Especially when you have to pay for IVF without any help from insurance. I hope you get your miracle.

  3. Here from ICLW.I am at a similiar place in trying to decide what to do with treatment as well. I hope you get some answers in the coming weeks. I hope you get your natural miracle in the meantime!

  4. Joining you from ICLW – While I don't understand all of what you've been through, I have had to undergo similar treatments for some of my own disorders, and they are frustrating (to say the least). I think the hardest part of all of this is just not knowing what the problem actually is or how/if we can fix it. I'm currently on the Lovenox injections daily to try to keep my own high risk pregnancy (after several ectopics, chemical pregnancies, and miscarriages), and it's hard to do so much to your body and not know what the result will be.I'm sorry you had a chemical pregnancy. So few people understand those, and those that do tend to write them off as not meaning much. But they do mean a lot to the person who had one. That was still a baby, regardless of how developed. I am truly sorry for your loss and you're in my thoughts.Nikki

  5. I found you through ICLW. I look forward to following your journey, though of course, wish you didn't have to go through so much. All the best with Dr. Sher. He is truly a wonderful, caring man.C

  6. Hi… I've just awarded you a Versatile and/or Stylish Blogger Award πŸ™‚ Follow the link below and take your pick of which award you'd like and spread the love to other blogs you love πŸ™‚ It means so much to me to be sharing this roller-coaster ride of loss/TTC with you all. Love for ICLWeek :)) xoxohttp://newyearmum.blogspot.com/2011/05/more-blog-awards-for-extra-happy-start.html

  7. Here from ICLW! I'm sorry for all you've been through. hopefully your consult with Dr Sher goes well and he can give you some answers. I too am sort of just waiting – which kind of sucks but is kind of nice to give my body a break to – but we have to do a bunch of test before my DE cycle in Portland, Oregon.I look forward to following your journey ICLW #13

  8. hello from iclw!!hoping your consult goes well and you are able to move towards your BFP!!!have you tried or thought of acupuncture to help?

  9. I am here from ICLW. So glad you found Dr. Sher. I've heard fabulous things about him! I wish you the best of luck! I too have DOR and it is such a difficult diagnosis to take! What supplements are you taking? I've been taking the DOR cocktail, DHEA, Myo-Inosotol, Melatonin and CoQ-10.

  10. I'm so sorry to read about the tough road you've been traveling.I'm new here so ignore this if you've already covered it. I also had numerous early pregnancy losses and a few chemical pregnancies. Turns out I had luteal phase disorder which can manifest with low progesterone levels leading to an insufficient uterine lining or normal levels with a low response leading to the insufficient lining. Treatment was progesterone suppositories starting at 3 DPO. Good luck and I hope you have success soon.ICLW #6

  11. Just finding your blog through ICLW and catching up on your story. I am so sorry you've had a bumpy road, but it looks like you are headed in the right direction with Dr. Sher. Best of luck in finding your way and your family! I'll be following your story!

  12. Stopping by from ICLW. I too had a phone consult at the Sher Institute but with his partner, Dr. Greene. I found it very helpful. I also have a blood clotting discorder and this time I started Lovenox the day after my transfer. Not sure if that was the trick but our last FET worked. I also have DOR and am only in my early 30's. Not fun. Good luck to you.

  13. hi – stopping from ICLWoh my, I have never even heard of menopause at 30… eek indeed…great that you guys seem to stay positive and keep trying on your own!good luck to you!

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